Thursday, October 16, 2014

Walk N Roll and Spreading the word

Hello fellow lady bug lovers. There has been alot that has happened since I last updated the blog. Emma got her GoBabyGo car! It was built by an awesome group of volunteers and she LOVES it!!!

We also go to appear on a local TV news segment plugging our Annual Walk N Roll! Emma was a star and stole the show!! That was her job! If you didn't get to see it here is the link, https://www.youtube.com/watch?v=A-ApQNaIbQE&feature=em-share_video_user

Last we talked we were gearing up for our Annual Walk N Roll. It was such a success. Thank you all so much for all your love and support. We had a great turn out and overall we raised about 1100.00 dollars. We weren't the highest earners but that doesn't matter any penny helps! We had quite the big team of supporters as well. Thank you thank you thank you!!!

As we enter into October it is Spina Bifida Awareness Month. My mission is to spread the word about Spina Bifida. There are so many misconceptions about our kids abilities and what they can do. So I've taken it upon myself to show the world that they are just like any other kid. Emma has temper tantrums, she smiles, she laughs, she plays, she dances, she talks, she loves her baby dolls. Emma is just like any other 18 month old. There are just a few differences, she doesn't get around like a typical kid but oh buddy she can FLY when she has her wheels beneath her. So in light of spreading awareness I have been participating in a hashtag campaign to change the misconceptions about kids with Spina Bifida and to prove to the world that she is in fact just like any other kid.

I have been doing daily Facebook updates with a little tid bit about SB and then putting a couple pictures of my sweet girl! Peoples feedback has been so encouraging to me. I am just doing what any other momma would do. Trying to spread the word, because before Emma was born I had NO IDEA what Spinda Bifida was. I am still no expert but through this life I'm learning a lot more. I love answering questions about Emma, if I can change just one misconception then I've done my job!!

If anyone that reads this blog has questions for me please feel free to ask. You don't just have to wait for October/Spina Bifida Awareness month to ask. If something pops into your head in the middle of February please ask me!











































Thank you all for your continued love and support! We so appreciate each thought, prayer, good wish that goes up in our honor. Please keep praying for continued good health for our girl! We are so blessed by her and her health and happiness and we know its because of prayers! 

Saturday, September 13, 2014

Vacation and Fundraisers

We made it another year! We did it! Emma did GREAT! She is nothing short of amazing!!! We started out early on Friday morning stayed in Georgia over night then made our way to Sanibel Island, Florida on Saturday! Our condo was perfect just like we remembered it!! We spent two fantastic relaxing weeks looking over the ocean, swimming in the pool, and just relaxing! In the middle of the trip Peter, Emma and myself journeyed north to Tampa to see Peter's mom and her husband. They threw a party for us and so their friends could meet Miss Emma. It was so nice to meet everyone who has been praying for our family and specifically our girl! We had a great time all around in FL. I'll post plenty of pics at the bottom.

It's the time of year again for our annual Spina Bifida Walk N Roll. It is September 27 at Miami Whitewater Park. If you'd like to join our team we'd love to have you, if you're able to make a donation that would be fantastic. We are also selling t-shirts again. They are soooooooooo cute, let me know by email or comment here if you'd like a t-shirt. They are easy to ship!!!!!! If you'd like to donate please follow this link:
http://www.sbccincy.org/index.cfm?fuseaction=donordrive.team&teamID=5297

Thank you so much for your faithfulness, love, prayers, and support. We love everyone and are so grateful that God has blessed us with you! Onto the pictures of my sweet girl!!!

                                                  
                                       
   























Sunday, August 17, 2014

Getting Settled

Hello everyone. I am SOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO sorry that I've been a lame blogger lately. We have been extremely busy with moving and getting everything/everyone settled. We're getting there. Slowly but surely getting there.

Since I last wrote we had clinic. It went well. There were no new changes which is always nice! Everyone was very pleased with her progress. That always makes this mommy happy! We start speech on Tuesday. She just needs a few sessions. Emma is such a parrot. Lately she's gained a few new words. They are juice which sounds like swoosh, (which is ADORABLE), Hi, momma, she knows how to say ssssshhhhh. LOL! She is a riot! She is such a funny happy go lucky girl.

Emma had to have a CT scan on July 21st. I could have sworn she was having a shunt malfunction. She was so fussy, and irritable, had an appetite that was coming and going. She just wasn't my little girl. The CT scan showed that everything was stable which is WONDERFUL. We saw Dr. Stevenson after her test and he was pleased with everything as well. He gave us his blessing to go on vacation which always makes me feel better about leaving cincy! We don't have to follow up with him until December.  All is well on our end. We hope you all are enjoying your summer!!!

Here are some pictures of my sweet little girl!
This was our first night in our new house! 

Emma playing like a big kid while mommy and gigi unpacked her room! 


Giving me the stink eye! 

She LOVES the piano! 

We spent an afternoon at Coney Island and she loved it! 

Her first carousel ride! 

Mesmerized! 

She was laughing it up at another little girl! 

This is the first time she has ever played on her knees! I love love love our therapists and their creativity! 


She GORGEOUS! 



We were at church and she was trying to help the pastor give his sermon so we had to step out! She obviously thought it was HILARIOUS! 

Beautiful photo of my girl by Amanda Walriven Photography

Working on our sitting up in the pool! 

She LOVES swimming! 

Sitting like a big girl on the train at the zoo! 


I love this picture! 

Such a HAM!