Ok so I like this idea of GIF's!! They are fun!!!
Anyways, where was I?
Emma is amazing! Like you already didn't know that. We had clinic on last Monday. That went fairly well. Dr. O came in first and said that Emma was looking good. At our last PT appointment Nancy had said to ask clinic about possible OT because she didn't seem to think Emma was grabbing and reaching for things enough. Well according to Dr. O, Emma is doing just fine. In my mommy mind I agree. I think Emma is going to be more social then interested in toys, (save us some money kiddo). I asked Dr. O about us going on vacation and she said she see's no reason why it'd be an issue. She said if her shunt were to malfunction we'd have time to get back to Cincy which has always been my plan anyways.
Then Dr. Vanderbrink came in. He's Emma's urologist. The week leading up to clinic I am supposed to keep a diary of her output. Well I did that, on my phone though, so while we were waiting for her ultrasound I put it onto paper. Doesn't matter that it was a paper towel. LOL!! Dr. Vanderbrink didn't mind. He said that we should continue on with her cathing every four hours until we have her urodynamics which is in November. However on the flip side, we are able to start cathing her at 9 pm and then putting the little one to bed. Right now she is still eating at 11 pm and being cathed but I have to wake her up to eat so I think she'd be able to eat at 7 pm and then go to bed, but the doc doesn't want her going more then 10 hours with out being cathed so we compromised.
Last but certainly not least was Dr. McMahon. She is the physical medicine doctor. She also agreed that Emma doesn't need OT at this point. WAHOOOOOOOO, however she did notice that she thinks Emma has lost some movement in her left leg, which could be indicitive of tethered cord or syirnx. Both of which if serious enough could result in a surgery. We always knew surgery was in our future we just weren't thinking about it at 4 months of age. She called Dr. Stevenson, because she didn't know if he'd be comfortable with us going on vacation with this new possibility. It took some sorting out and communicating but it turns out...
WE'RE FLORIDA BOUND!!!!!!!!!!!!!!!!!!!!!!
Did I mention that I love GIF's!!! Emma will have to have an MRI when we return but we have his blessing to go on vacation!!!
Like always we ask for your continued prayer. We ask that you pray for Emma's health in general along with her SB health. Please pray that her shunt continues to function as it should and that she doesn't get an infection. Also please pray that she doesn't develop symptoms from her Chiari, and that she doesn't have anymore seizures. Also please pray for traveling mercies as we venture to FL and that Emma stays healthy and happy all the time but specifically while we are so far away from our beloved doctors.
Thank you everyone for your continued support. It means the world to us!!!
She loves her fingers.
I was making our bed and sat her in my body pillow. I think she rather enjoyed herself.
All clean!
We stopped at the Nike store just to check it out, I think these are a little big! LOL!!!
