Happy Holidays!

Happy Holidays everyone! I hope that you all have had a great Oct/Nov! I sure know we did. Not a whole lot has happened in our family since I last posted. We celebrated Halloween in style. Emma was a little mouse and boy I would welcome her little mousiness in my house all day everyday! Peter made Emma a little mousetrap for her wagon and it was adorable!

We also went to the Walk N Roll to spend the day and support our Spina Bifida friends down there! It was great to spend the day with them.

Emma and another friend went to a local place called Totter Otterville. It is a fun indoor play place for younger kids. I took Emma in her stander. I'm always hesitent for new places like this because I am not sure how accessible they are. This place impressed me though. It was very accessible and she had a great time. Her favorite area was the make believe area. She carried a little baby around for a good 45 minutes. She is such a good little mommy. She loves her babies.

The beginning of Nov Emma was exhibiting some strange things. Her appetite had changed, she was irritable, and during her last two PT/OT visits she was a complete bear. But on this day during her PT visit she screamed the entire time. During her fit she did her staring spells again and at one point her eyes rolled in the back of her head. I called Neuro and they told me that with what I was describing they wanted us to bring her in. So to Children's we went. She had a CT scan, a shunt series which is a series of x-rays, an abdominal ultrasound and a urinalysis. All came back good. THANK GOD. They aren't sure what all that was about but they were comfortable with it all, they kept us overnight and sent us on our way the next morning.

We celebrated Thanksgiving with about 30 people at our house. Emma enjoyed all of her company and had a great day!!!

This past Thursday Emma got her WHEELCHAIR!!!!!!!!!!!!!!!!!!!!!!!! It's tiny. I knew it'd be small it is very small. Emma took right to it. She loves it. We call it pinky!!! It has light up casters and everything. She is an amazing little girl who never ceases to impress me.

Thank you all for your prayers and support. It means the world to us. Please continue to keep my girl in your prayers. She currently has a UTI, she is on an antibiotic to treat it. She also has a sedated MRI on Dec 12. We have to be at Children's at 6:30 in the morning. I am praying that all these come back clean and we can continue with business as usual.

Hospital breakfast

Dancing with Daddy

Baby its cold outside

She is SOOOOOOOOOOOOO cute!!!!

Giving her baby doll a bath

She had to have another 30 minute EEG and this was her hair afterwards. 

OT wore her out! 

Doc McEmma ready for her 1st patient. 

She had a little fun with a cup of pizza sauce! 

Thanksgiving grocery shopping. 

Doing some finger painting! 

Look mom "No hands"!!!!!!!!

She was applying lipstick

Trying something new in PT

She actually didn't mind this activity

Her PT/OT reward! 

Our first stop was Target! 

Walk N Roll and Spreading the word

Hello fellow lady bug lovers. There has been alot that has happened since I last updated the blog. Emma got her GoBabyGo car! It was built by an awesome group of volunteers and she LOVES it!!!

We also go to appear on a local TV news segment plugging our Annual Walk N Roll! Emma was a star and stole the show!! That was her job! If you didn't get to see it here is the link, https://www.youtube.com/watch?v=A-ApQNaIbQE&feature=em-share_video_user

Last we talked we were gearing up for our Annual Walk N Roll. It was such a success. Thank you all so much for all your love and support. We had a great turn out and overall we raised about 1100.00 dollars. We weren't the highest earners but that doesn't matter any penny helps! We had quite the big team of supporters as well. Thank you thank you thank you!!!

As we enter into October it is Spina Bifida Awareness Month. My mission is to spread the word about Spina Bifida. There are so many misconceptions about our kids abilities and what they can do. So I've taken it upon myself to show the world that they are just like any other kid. Emma has temper tantrums, she smiles, she laughs, she plays, she dances, she talks, she loves her baby dolls. Emma is just like any other 18 month old. There are just a few differences, she doesn't get around like a typical kid but oh buddy she can FLY when she has her wheels beneath her. So in light of spreading awareness I have been participating in a hashtag campaign to change the misconceptions about kids with Spina Bifida and to prove to the world that she is in fact just like any other kid.

I have been doing daily Facebook updates with a little tid bit about SB and then putting a couple pictures of my sweet girl! Peoples feedback has been so encouraging to me. I am just doing what any other momma would do. Trying to spread the word, because before Emma was born I had NO IDEA what Spinda Bifida was. I am still no expert but through this life I'm learning a lot more. I love answering questions about Emma, if I can change just one misconception then I've done my job!!

If anyone that reads this blog has questions for me please feel free to ask. You don't just have to wait for October/Spina Bifida Awareness month to ask. If something pops into your head in the middle of February please ask me!

Thank you all for your continued love and support! We so appreciate each thought, prayer, good wish that goes up in our honor. Please keep praying for continued good health for our girl! We are so blessed by her and her health and happiness and we know its because of prayers!